Adapting to Life
With Acromegaly

Acromegaly affects not only your physical body, but it may also impact your self-image and emotional well-being. It's useful to acknowledge the impact that acromegaly has on your life.

This page highlights the emotional impact of living with a chronic disease and suggests how you can adapt to living with acromegaly.

Getting Used to Your New Life

It may take some time to get used to life with acromegaly. As with other chronic illnesses, you will have good days and bad days. Rare diseases like acromegaly can be even more challenging sometimes because you may never have heard of it until you were diagnosed.

The good news is, now that you have a diagnosis, you can make changes and prepare for the future.

Try to seek out:

  • Information and answers about your condition and treatment options
  • Others whose lives have been affected by acromegaly
  • Ways to manage how you are feeling

Pay Attention to Your Feelings

You may have had many different feelings since your acromegaly diagnosis.

It is normal to feel differently from one day to the next. Sadness, anger, fear, and guilt are just some of the emotions you may have.

Try not to feel overwhelmed, and take one day at a time. Learning more about your condition and understanding how to better manage your feelings will help you keep a more positive outlook.

If you think you are depressed or dealing with other mental health issues, it is important to tell your doctor. Your doctor can help or refer you to a mental healthcare professional for more specialized care.

Talking to Your Loves Ones About Acromegaly

It may be difficult to talk about your condition or how you are feeling. You might feel embarrassed about your symptoms or nervous about others' reactions to your diagnosis.

When talking to your loved ones, remember:

  • There is no rush. Talk to them when you feel ready
  • You decide what to share. If you aren't comfortable sharing all the details, then don't
  • Talking to your loved ones face-to-face is not your only option. You may find it easier to write a letter or send an e-mail
  • They will probably have questions and ask what they can do to help

Asking for Help

Your loved ones care about you and will want to offer their help—let them. Here are things you can ask them to help with:

  • Coming with you to doctor appointments
  • Running errands
  • Completing household chores
  • Providing emotional support

Giving Back

As a person living with acromegaly, your experience gives you a unique ability to give back to others. To people newly diagnosed with acromegaly or another chronic illness, you can offer understanding. To those who are perfectly healthy but fear they may one day have a chronic condition, you can be an example. To those who love and care for you, your ability to adapt to illness offers inspiration.

Learn more about taking an active role in managing acromegaly disease