Taking Action:
Your Role Is Important

It is not uncommon to feel overwhelmed by your condition. But there are things you can do to take control of your acromegaly and your life. Becoming your own health advocate is a good place to start.

Here are some tips to consider:

  1. Ask questions. Your healthcare team is there to answer them
  2. If you are not happy with your current care, seek a second opinion
  3. Educate yourself with recent information on your condition and medical therapies
  4. Attend all follow-up appointments as scheduled. Be sure to follow through on any tests ordered by your doctor
  5. Keep your own medical records
  6. Pay attention to your medical bills and health insurance coverage. If something seems incorrect, try to have it fixed
  7. If something doesn' t seem right, speak up!

Seek Out Support

A strong support system can go a long way. Good social support has been shown to improve physical and mental health.

A support system can include family, friends, religious counsel, and other people who have acromegaly. Even though acromegaly is a rare disease, there are numerous support organizations and advocacy groups dedicated to helping those affected by acromegaly and rare diseases.

For a list of support groups, click here.

Maintain a Positive Attitude

Often said, but too often ignored, this advice is very important for anyone with a serious medical condition. Keeping a positive attitude is one of the best nonmedical treatments you can offer yourself. Maintain a positive outlook in dealing with your disease as well as in occupational and social situations. Remind yourself that you are more than your disease.