Ask Your Doctor About Managing Acromegaly

Whether you are newly diagnosed or have been living with acromegaly for years, it is important to have good communication with your doctor and other members of your healthcare team. Preparing questions for your appointments can help you get the most out of your time spent with your doctor.

Talking to Your Healthcare Team

Your experience with your doctor and other members of your healthcare team should be positive. Being open and honest will help establish trust and confidence in your care.

The time you have with your doctor at each appointment is limited. Make the most of this time by preparing topics you want to talk about during your next appointment.

Newly Diagnosed: Questions to Ask Your Doctor

  • Have you treated other patients with acromegaly?
  • Will I need further testing?
  • What types of treatment do you recommend?
  • If I am a candidate for surgery, what can I expect? What is recovery like?
  • If surgery is not right for me, what can I expect?
  • How often will I need to see you?
  • Are there additional ways to help manage my symptoms?
  • Are there other specialists I should also be seeing for my other health conditions?
  • How do I reach you outside of office hours?

Currently Being Treated for Acromegaly: Topics to Discuss With Your Doctor

  • How you are feeling mentally and physically
  • Any new or worsening symptoms
  • Any new information on your condition from your doctor
  • Your growth hormone (GH) and insulin-like growth factor-1 (IGF-1) levels
  • How are your levels trending? Are you close to reaching your goal numbers?
  • When should your levels be checked next?
  • Side effects of current treatment
  • Other available treatment options, if applicable

Making the Most of Your Appointment

There are other things you can do to get the most out of each visit to your doctor' s office:

  • Take notes and read them after the appointment, or record the visit to help you remember what was said
  • Bring a family member, friend, or caregiver with you to help take notes and ask questions
  • If you need more information or don't understand something your doctor is saying, speak up! It is important you leave the appointment feeling comfortable with your care
  • Share what may be "private" or "personal" information related to your condition. Remember, your doctor is a healthcare professional, and you should not feel embarrassed sharing with him or her
  • Always bring an updated list of medications you are taking, including over-the-counter drugs, herbal supplements, and alternative therapies